Tell us a little bit about yourself… What’s your story?
I am a financial professional specializing in helping families with special needs. It sounds very official, but the truth is after having my daughter I was trying to figure out a life insurance structure and retirement it was so difficult. I called my company’s experts and they walked me through the process. They also said, “hey, you should do this for others!” So here I am.
I am a mom to 2 wonderful girls, Charlie (3) and Ruth (1). My amazing husband and I found out Ruth was going to have TSC when she was in my belly. We didn’t confirm it then but the Rhambdomyomas (benign tumors) were a good indication. Being in the NICU was very hard, and right now I have some fresh emotions about it since we were discharged just over a year ago. My whole mission is transparency. I am a giver so I want my story and my emotions to be real and current. I’ve had a rough week. The memories of being in the NICU have flooded my head. It didn’t help that Ruth has had a 101 fever and seizures the last few days.
Michel Gleason said it best at the end of the documentary, Gleason: “taking care of someone is a total mind f*ck.” Most days I am way more positive but you hit me on a day when emotions are high. That is what this is all about…having emotions, sharing them, learning, and healing.
What conventional lifestyle product or brand do you currently use with your daughter to help make that person’s day-to-day easier?
1) A Nest Camera. We use it as a baby monitor. We can also catch seizures when she is sleeping, upload them to YouTube, and send them to our neurologist.
2) Maya Wrap. I would not have survived the first year without this.
3) MassMutual. Where I work! Financial planning services for families with special needs.
4) Joovy Ultralight Caboose Stroller. My toddler rides on the back and Ruth can ride up front. Folds up not huge.
What’s your best advice for someone else on this journey of caring for someone else?
- Ask for help as soon as you think you need it. Reach out to others who may have already walked the path you are on.
- Advocate for both your child and yourself at every step. There are no stupid questions when you are talking with your care team.
- Transitions are difficult! They are even hard for high functioning adults. Think of your first week away from home when you were at college or the first job you had. Those were anxiety-laden times.
Why do you think the mission of Springible is so important?
This mission brings hope. Knowing what resources are available is all of the battle. If I can find companies and products that have been tested and support other families with special needs kids, I am all in.
– Springible Contributor, Mary McDirmid